Absolutely powerful article and message. There is so much power in connection and collaboration. When Sickle Cell organizations, advocates, Warriors, caregivers, researchers, and healthcare partners share resources, amplify voices, and work together, our collective impact grows. We must continue building bridges that bring hope, improve lives today, and move us closer to a safe, accessible, and broadly available cure for all.
— Tesha Samuels (in reference to the story “Leaders of the New School”)
Let’s Get Better
Excellent article! I’m going to do more about my own health care. It does not involve any rare conditions. But I can do better!
— Eric (In reference to the story “‘You Look Fine’: Award-Winning Film Turns Invisible Illness Into a Call for Preventative Health”)
This article was amazing! Vanessa is such an inspiration! As a sickle cell warrior, I learned a later than I like that people like her exist to build us up and provide a safe space. Starting with our babies is essential so we never miss a beat in living well with sickle cell. It’s why I created my organization Welcome to the World Warrior foundation in Philadelphia Pa for our warriors!