April is National Autism Awareness Month. The Autism Spectrum Disorder (ASD) affects millions of families across the United States, regardless of racial, ethnic, and socio-economic backgrounds. However, the experience and impact of autism can vary significantly among different communities. For the Black community, these experiences are more nuanced and layered due to disparities in healthcare, diagnosis, and education, as well as the stigma of the diagnosis.
Author, autism advocate, and nutrition health coach Sonya A. Bell shares, “I think the Black community needs to understand that it’s OKAY to have an autism “label”. Our culture creates this shame which in turn causes a taboo mindset. On the contrary, we need to have the diagnosis documented in order to receive the necessary services to support your child.”
One of the most critical factors in managing autism is the timing of the diagnosis. Early diagnosis can lead to early intervention, which is crucial for improving long-term outcomes. However, studies have shown that Black children are generally diagnosed with autism later than their white counterparts. This delay can be attributed to several factors, including limited access to healthcare professionals trained to recognize autism in diverse populations, socioeconomic barriers, and a historical mistrust of medical institutions within the Black community.
Bell, whose middle son, Isaiah, has autism shares her journey of advocacy through education and nutrition in her book “Moving Forward: Details of an Autism Journey.” “I wrote my book to help educate other parents on alternative ways to support their children. I want to help parents understand that nutrition is important and foundational. It’s my hope to inspire others with our personal story.”
The educational system plays a pivotal role in the development of children with autism. Racial disparities in educational resources and disciplinary actions can adversely affect Black students with autism. These students are often in schools with fewer resources, less experienced staff, and higher student-to-teacher ratios, which can impede their educational progress.
Additionally, Black students with disabilities, including autism, are more likely to face harsher disciplinary measures. These practices can disrupt their education, leading to poorer academic outcomes and limiting future employment opportunities, which contributes to ongoing economic disparities. The impact of autism in the Black community is profound and complex, affecting individuals and families both personally and economically.
Bell suggests three simple ways the Black community can do more to support autism awareness:
1. Remove judgment, instead be empathetic.
2. Be open to learning about alternative ways of healing, such as nutritional changes.
3. Just talk about autism more. Look for a local support group and participate.
By addressing the stigma associated with autism openly and fostering a more inclusive and understanding environment, the Black community can improve both the immediate and long-term well-being and success of individuals with autism and their families.